Finding a new routine with diabetes

Since the diagnosis, we’ve had the hospital stay, a weird five-day ‘crash course’ at the hospital, and the return to school. They’ve all been taxing in their own right.

However, I’m mostly amazed at child number one’s (the diabetic’s) resilience as we try to find a new routine.

Diabetes isn’t easy for kids

My wife was diagnosed with type one diabetes when she was nineteen. As long as I’ve known her, she’s had it. You’d think she’d be ready for this. You think I’d be familiar with diabetes.

The thing is this: child number one is half her weight, and seems to be doubly sensitive to insulin. So, any miscalculation has much more drastic effects. Even more, his pancreas is still producing about 10% of the insulin it produced before, and he seems to react to injections — and to sugar — differently at different times of the day.

The result is that, in addition to calculating the sugar in what he eats, he also has to look up the time of day in a table, do some complicated math (multiplication and division with up two two decimal places — and he’s in third grade) and figure out how much he should inject himself.

Then he has to eat everything he planned to eat, and nothing more. That part alone seems frustratingly difficult for me at thirty-eight.

He gets some help

This isn’t to say that our poor third-grader is on his own throughout the day. We live in Germany which is a weird, medical paradise. The doctors gave him a Verordnung (an order? everyone is explicit in telling me it’s not a prescription) for a caregiver and a medical care company near the school sends someone at mealtimes.

We do the math for him, and create these tables that he only needs to learn to read together with his caregiver.

And, of course, the teachers are super supportive. Which is to say, they let him do he has to do. (But the after school care seems happy to look the other way if other kids take his snack, so there’s that.)

Constant adjustment

Part of what has been hard for us has been the reality that you start with some ‘suggested values’ for many variables — how much insulin per unit of carbs, the correct amount of carbs to eat before doing sports, how many carbs to eat to correct for low blood sugar, the amount of slow-acting insulin to inject twice a day — and then you basically do trial and error.

In the week before last, there wasn’t a single day that we didn’t adjust his ‘food factors’ and recalculate the table he needed and his caregiver used. We constantly reduced his slow-acting insulin, and we reduced the amount of insulin he needed at breakfast — completely skipping it (intentionally) one day — before feeling like we got a handle on how his own personal diabetes worked.

And, the doctors tell us, we won’t feel comfortable with it for very long before his growing body changes the way all of these things interact and we can start the experiment again.

He’s a trooper, his dad is a whiner

From time to time, he gets upset or asks when it will all be over. But, in general, he’s pretty strong about saying “I didn’t inject myself for that, I can’t eat it.” And, I’ve pointed out to him, he’s getting more sweets now than his brother and sister, but only when his blood sugar is low (and we want to avoid that in the future).

I’m the one who feels bad for him. He sits down at a meal and has to figure out what he’s going to eat. I can’t do that. I eat until everything is gone.

And, we invest a lot of time together with him, but it’s not fun time doing stuff together. It’s time in which we lecture him on where to put his stuff in school because the caregivers couldn’t find it. Or, practicing math because he has to be much better at it.

I never wanted to be a dad who made the kids’ at-home time about managing their school performance. And, indirectly, I feel myself turning into that kind of dad. And I mostly feel sorry for myself in all of this.

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Prepare to Start Again

This is the final chapter in my The Obstacle is the Way project! It’s a little hard for me to believe I made it.


This chapter is two pages long. To be pedantic about it, it’s less than two pages long, as neither page is completely covered with text. It’s a short chapter.

And, nonetheless, I have a few gripes. Not with the overall message: after one obstacle comes the next. In fact, I like this two-line paragraph:

Elysium is a myth. One does not overcome an obstacle to enter the land of no obstacles.

Who can argue with that? And who isn’t guilty of secretly thinking “if I just get these things here lined up…. I’ll never have to worry again” even though any degree of human observation tells us that’s not the case? I know I’m guilty.

It’s a solid ending to a book about overcoming obstacles: we learn to overcome obstacles, not because we want to live free of obstacles, but to become good at overcoming them.

A tangent and a rant

But then, there’s a phrase on the chapter’s second page that makes me crazy:

Passing one obstacle simply says you’re worthy of more. The world seems to keep throwing them at you once it knows you can take it.

I am available for a conversation about ‘the world’ as a sentient being that can somehow care for us in a quasi-spiritual way. However, I think it’s ridiculous to think of the world knowing anything about me, or first checking whether I can ‘take’ an obstacle before throwing it at me.

The idea makes me think of two beneficial gut bacteria, fading quickly under the onslaught of an antibiotic regimen.

“I don’t know if I’m going to make it.” The one says to the other.

“Come now!” The other answers. “I’ve heard the human say he values his microbiome. He wouldn’t do this if he didn’t know we can handle it. Be strong!”

Returning from my brief venture into the ridiculous, I feel like this is something of a dangerous mindset. Not because it pretends to know the unknowable (the mind of ‘the world’), but instead because it handicaps our empathy.

I want to get better at overcoming obstacles. And, the book was a great inspiration and provided tools. But, for every example of people beating obstacles, a good google search for celebrity suicides would give a counter-example of people being beaten by obstacles.

The fact of the matter is, regardless of all the tools we may be able to develop, anyone can need a hand up in a desperate moment. The idea that “the world wouldn’t give you this challenge if you couldn’t handle it” has the unspoken corollary that “the world chose this experience for you for a reason and I would be robbing you of it if I helped.” And that’s never true.

Winding up

This project has dominated the blog for more than a year. It’s probably the thing I write about the most. And now it’s over.

But that probably just means it’s time for me to find a new mountain to climb.

The Diagnosis

The background

A few weeks ago — maybe two months — our oldest had a tick. My wife is fond of telling me that there’s a higher risk of Lyme disease in Germany than in the States, so she was watching for the signs. (Even though we found the tick and removed it.)

This blog post is named ‘the diagnosis.’ You can guess what happened next: he had Lyme disease. All the classic symptoms and a blood test. No worries: German medical care is excellent. We felt bad for him, but a three-week course of antibiotics was prescribed. I’m a big fan of the microbiome, but I’m familiar with what Lyme disease turns into, so, I don’t think we had a choice.

After a week on antibiotics — and the return to school — he began to get really, really tired. But, antibiotics and school were explanation enough, right?

It gets worse

We tried to spoil him as much as we could and counted down the days until the antibiotics were finished. The doctors had said that they could give him a note to get out of school if he got too tired, so the wife took him in for the note.

Only by chance — the note could have been a matter of course — they talked about the symptoms and the doctor asked him to pee into a cup. The way the wife tells the story, the doctor went off and, when she returned, obviously had bad news.

“What?” My wife asked?

“Diabetes.” The doctor said. “Sugar.”

My wife just sent me a photo of the referral to the hospital with the diagnosis written on it with a comment and I read it between lessons.

A lot to process

Let me be clear: I don’t feel bad for him. I don’t even feel sorry for myself (even though I tend in that direction, anyway). But, the poor guy has a lot to learn, and new habits to form. And, I’ve got quite a bit to learn along with him, as well as a set of ‘soft skills’ to help him learn his new habits, as well as the application of willpower, without adding to his current level of stress (which is high enough as it is).

I’ve benefitted from blogging about stuff here, but I’ve refrained from writing a lot about my family (I imagine teenage kids stumbling across what I write — or, worse, classmates). But, I’ve decided that I would benefit from writing about it. And, though I don’t strike up much communication via this blog, if I contact other parents of kids with diabetes… that would be okay, too.

A Short Update

Life throws us curveballs. But, you now know that I strive to be ‘mentally tight’ and ‘revert to myself.’ That’s why I wanted to take a minute to reflect — more for myself than for you, my mysterious reader — on my plans for getting back to being me.

Two websites? Why not four?

I’d been blogging here, and working on my django-powered EFL worksheet generator. That seemed like plenty of activity, right? However, as the worksheet generator gets closer to counting as ‘finished,’ I wanted people to use it. And, ideally, to pay for it.

I could pay for ads. (And I might, yet.) But, my first plan is to try something cheaper: make more websites that are free, and sort of ‘sponsor’ them with the worksheet generator.

A blog for EFL/EAL teachers

I’ve started a blog about teaching — both a how-to out of my ten years of experience and reflections on my attempts to improve — which seems like a good place to find people who are still forming their own teaching habits. (My basic target group: why try to sell yourself to people who already have routines? Let their colleagues convince them my product is great.)

As it takes shape, I’ll mention more here. (I seem to benefit from writing about the things I’m doing.)

My free EFL resource website

For a time, I had a page on this blog that hosted PDF files of reading/business activities I’d made. However, as long as it was all ‘one site’ I felt like I had to have my ‘teacher face’ on, and not just my rambly-self face. And I wanted this to be a place where I sort of reflected and rambled about all the projects, not just the classroom ones.

So, I moved the New Spork City worksheets to another site. The idea is that I can promote it a bit (the plan now is just to upload worksheets to resource trading sites — maybe post answers on Quora) and it can showcase both my great stories (I’m proud of them independently from any kind of self-promotion) and the worksheets that I make.

More work… Only maybe

The thing is, I’m not sure I’m working harder now. I mean, I’m spending more time typing at a computer. That’s for sure. And I’m a bit tighter stretched for time (family drama contributes to that — but the O’Malley family can benefit from my own family drama — you’ll eventually read it there.)

But, reflecting in writing is good for me. Maybe I’d be just as well off with a Google Doc or a journal. But, this is what I’m doing and I hope it all takes a direction.

Finishing

I’m pushing hard on the Obstacle is the Way. And, I want to ‘finish up’ Dynamic EFL. (I have a list of things to do to consider it ‘finished,’ as well as a list of things that I want to learn — and then include — for version 2.0)

I even have a cigar already bought, which I’m going to smoke when both things are done. (You’ll know, because I’m looking forward to celebrating becoming a ‘finisher‘ here.) I hope that there will be an extra burst of energy that comes with completing a task and turning to face the next task. (In coding, that probably means the fantasy pilgrimage. In teaching, that probably means everything but vocab review.)

Balance

The things I write about here are all secondary to my goal of being a great dad and at least an average husband. (The wife doesn’t read this, it’s okay.) And, while these things give me a focus and a direction — and help me in my professional life — they aren’t everything.

I’ve been trying to be more active about adding balance to my life, including working out every day, reading more, putting my phone down, and even drawing when I had time in the summer. (I’d like to do more — I’m convinced that it’s as close to meditation as I’ve come, yet.)

Ideally, I’ll write a little about those things, too.

Writing is, after all, good for me.

Channel Your Energy

This is the second-to-last chapter in my The Obstacle is The Way project, bringing me that much closer to claiming the title of ‘finisher.’ I wasn’t super impressed with this chapter.


This chapter kicks off with a killer quote from Marcus Aurelius:

When jarred, unavoidably, by circumstance revert at once to yourself and don’t lose the rhythm more than you can help. You’ll have a better grasp of harmony, if you keep going back to it.

Partly, I wish that ‘revert to yourself’ was the kind of thing I could use in conversation: “Son, you have diabetes, but let me first help you revert to yourself.” It sounds cold, but it’s such great advice because it’s the first thing I want people to do: get back to yourself, because that’s the person who’s going to have to deal with this problem.

But then, Ryan Holiday lists examples.

And I have a problem with his examples. Partly, it’s that there’s a lot of sports in there and… who cares?

My larger problem, though, is that I’m wary of using black athletes as examples of overcoming adversity, because I’m not always sure they do. Ryan mentions Arthur Ashe and Joe Lewis. I’ve only ever heard Joe Lewis’s name in passing, and Arthur Ashe’s name not at all, but the premise in both examples is this: denied ‘permission’ to be emotional players because they were black, they both channeled all that energy back into their performance and excelled.

And I certainly think that channeling your energy into constructive channels is better than not. Without knowing anything about either of the athletes, though, when I put myself in the shoes of an elderly Joe Lewis or Arthur Ashe, I wonder if they’d look back and feel successful.

Everything I’ve heard suggests that the world of the 1% is just as degrading for minorities as the rest of reality, though maybe not quite as dangerous. Maybe they can see themselves as one link in a long chain of change, and be content. I don’t know.

Either way, Ryan Holiday is right in using them as examples of people standing up to adversity, and the examples he draws — here in my favorite paragraph — from daily life seem pitiful in comparison:

And yet we feel like going to pieces when the PowerPoint projector won’t work (instead of throwing it aside and delivering an exciting talk without notes). We stir up gossip with our coworkers (instead of pounding something productive out on our keyboards). We act out, instead of act.

Physically loose, mentally tight

My greatest takeaway from this chapter will be to lines: the ‘revert to yourself’ quote from Marcus Aurelius that I mentioned at the beginning of the post, and an epithet that Arthur Ashe created for himself: “physically loose, mentally tight.”

Of course, he was talking about sports. (Ick.) But, I like the idea of feeling limbered up, energized and ready for spontaneous, but controlled action coupled with mental focus. It’s the kind of line I can adopt and apply to coding as much as to tennis.

And, it fits in with this paragraph from Ryan Holiday:

To be physically and mentally loose takes not talent. That’s just recklessness. (We want right action, not action period.) To be physically and mentally tight? That’s called anxiety. It doesn’t work, either. Eventually we snap. But phyiscal looseness combined with mental restraint? That’s powerful.

I hope I can learn to be physically loose and mentally tight… and to revert to myself when I start to stray away from who I want to be.